Huntington's Disease Society of America Center of Excellence at the University of Rochester

thru: Huntington's Disease Society of America Center of Excellence at the University of Rochester

• Offers supportive services for persons with Huntington's Disease and their caregivers.

  • Mutual support group for those with Huntington's Disease and those at risk
  • Dissemination of information on Huntington's Disease
  • Care and education to all affected by Huntington's Disease through the Huntington's Disease Family Center
  • Education of professionals towards a better understanding, treatment, and care of Huntington's Disease
  • Clinical research and drug trial observations

Eligibility: Resident of area served.

Application Process: Call ahead before attending your first group meeting. Call or email.

Required Documentation: Call for information.

Fees: Support group: no fee. Huntington's Disease Family Center, University of Rochester: Medicaid. Medicare. Third-party insurance. No one refused service based on inability to pay.

Coverage Note: Cayuga, Livingston, Monroe, Ontario, Seneca and Wayne Counties.

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This program is offered here:

HDSA at the University of Rochester

Map Marker 1
4901 Lac de Ville Boulevard
Bldg D, Suite 120
Rochester NY 14618
Toll Free:
(National headquarters)
Hours:
M-F 8:00AM-5:00PM.

Support group meeting varies monthly

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