Huntington's Disease Society of America Center of Excellence at the University of Rochester
thru: Huntington's Disease Society of America Center of Excellence at the University of Rochester
• Offers supportive services for persons with Huntington's Disease and their caregivers.
- Mutual support group for those with Huntington's Disease and those at risk
- Dissemination of information on Huntington's Disease
- Care and education to all affected by Huntington's Disease through the Huntington's Disease Family Center
- Education of professionals towards a better understanding, treatment, and care of Huntington's Disease
- Clinical research and drug trial observations
Eligibility: Resident of area served.
Application Process: Call ahead before attending your first group meeting. Call or email.
Required Documentation: Call for information.
Fees: Support group: no fee. Huntington's Disease Family Center, University of Rochester: Medicaid. Medicare. Third-party insurance. No one refused service based on inability to pay.
Coverage Note: Cayuga, Livingston, Monroe, Ontario, Seneca and Wayne Counties.
This program is offered here:
HDSA at the University of Rochester
4901 Lac de Ville Boulevard
Bldg D, Suite 120
Rochester NY 14618
Bldg D, Suite 120
Rochester NY 14618
Main:
Hours:
M-F 8:00AM-5:00PM.
Support group meeting varies monthly
Email:

